In honor of Dysautonomia Awareness Month this October, here’s your official spoonie guide, complete with tips and information to educate your friends, families and doctors. Plus, enter to win a $50 gift card in honor of Dysautonomia Awareness Month. See below for entry and details.
FACT: Dysautonomia symptoms can include lightheadedness, fatigue, fainting, blood pooling in the extremities, brain fog, chest pain, heart palpitations, nausea, migraines, shortness of breath and more.
HACK: Laying down or wearing compression socks can provide relief for some symptoms of dysautonomia. Many POTS patients have difficulty standing, so laying down can help your body improve the blood flow and reduce symptoms. A proper diet and exercise regimen can also help regulate symptoms.
FACT: Dysautonomia is an umbrella term for disorders of the Autonomic Nervous System (ANS), which helps to maintain the ideal blood pressure and body temperature, controls your heart rate, breathing, sleep cycles and digestion. Many dysautonomia patients look “normal” because their symptoms are invisible.
HACK: Educate others about the symptoms of dysautonomia and be aware of your own. The severity of symptoms varies between patients. Keep track of medications that work or don’t work, activities that provoke symptoms and note how your body reacts to different situations, so you can stay in control of your symptoms.
FACT: Over 70 million people worldwide have developed various forms of dysautonomia. A common form of dysautonomia is Postural Orthostatic Tachycardia Syndrome (POTS), which can be found in people of all ages and genders. POTS impacts an estimated 1-3 million Americans, and is most often found in women.
HACK: The most important thing to remember is that you are not alone. Get involved with a local support group or volunteer with an organization like Dysautonomia International or participate in Dysautonomia Awareness Month activities to help fundraise to find a cure.
FACT: Dysautonomia is a relatively unknown condition to doctors and patients.
HACK: Find a doctor or a specialist who is knowledgeable about Dysautonomia or autonomic disorders. It’s important to work with someone who can determine the most appropriate medications for you to effectively manage your symptoms, and who can answer any questions you may have. Finding a doctor who can create an individualized treatment plan is crucial. You can click here to find a doctor near you.
FACT: Although Postural Orthostatic Tachycardia Syndrome (POTS) is not a rare condition, it is frequently misdiagnosed. The average diagnosis can take almost six years.
HACK: Participate in Dysautonomia Awareness Month this October to educate patients, doctors, friends and family about this condition. Share your story or get involved with organizations like Dysautonomia International and support research to find a cure.
FACT: There is no cure for Dysautonomia.
HACK: Adapt your lifestyle to assure your symptoms do not get worse. Remember to wear compression socks to prevent blood from pooling in your legs and relieve the dizziness or lightheadedness from orthostatic hypotension. Get organized, fight off stress as much as possible, and eat lots of lean proteins, fibers, fruits and vegetables. A high sodium diet of about 2-4 grams of salt a day is recommended, along with increasing your fluid intake to about 2-3 liters of water each day. Refrain from consuming refined sugars and caffeine as much as possible. Make sure you are staying active as much as your symptoms allow and are getting a good night’s sleep. Most of all, stay positive!
Have some great tips and tricks of your own? Comment below to share!
ENTER TO WIN OUR DYSAUTONOMIA AWARENESS MONTH GIVEAWAY!
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