Promoting Lymphatic Research + Giveaway!

Lymphedema is a chronic lymphatic disease that affects 10 million Americans and hundreds of millions worldwide. Symptoms include swelling in one or more parts of the body. Although many people are affected by lymphedema, many patients go undiagnosed or untreated due to a lack of knowledge and resources. To change this, many organizations, companies, doctors and patients are coming together to promote awareness and find a cure for lymphedema.

LE&RN

The Lymphatic Education & Research Network (LE&RN) is a non-profit organization founded in 1998 to promote research in the fields of lymphatic diseases, lymphedema, and related disorders. Through their industry outreach program, LE&RN has established partnerships with the biotech and pharmaceutical industries working to find improved treatments and cures.

The Lymphatic Education & Research Network offers support and provides resources to lymphedema patients, including a tool to find a local lymphedema therapist. LE&RN has established a patient registry and tissue bank to serve as a repository of information for current and future researchers. Several fellowship grants are awarded each year to doctors, scientists, and organizations working in the field of lymphatic research. The immediate goal is to expand our understanding of the lymphatic system.

Actress Kathy Bates partnered up with the Lymphatic Education & Research Network (LE&RN) to build awareness about lymphedema. Some people are born with it, others, like Kathy Bates develop lymphedema after a mastectomy. Lymphedema is commonly caused after the lymph nodes are damaged or removed from breast cancer treatment, or it may develop after injury or surgery.

Medi For Help

Mediven, a compression hosiery company, is making a difference in Haiti. Medi For Help was founded in 2010 after an earthquake struck the country leaving more than 300,000 men, women and children injured. This relief project provides amputees with lower limb prostheses and offers orthopedic, wound care and lymphedema treatment. Medi For Help has provided treatment to 4,500 Haitians and counting. The project provides support once the patient starts walking again. Medi For Help also now treats patients with diabetes or those recovering from a car accident.

Compression Garments To Manage Lymphedema

Although there’s no cure for lymphedema (yet!) the condition can be managed with the help of a lymphedema therapist, compression garments, Manual Lymph Drainage, and other techniques. Many compression companies are paving the way in wound care and lymphedema treatment to provide innovative, comfortable and effective high compression garments.

Strong & Durable Wraps

Compression wraps are a great alternative to high compression garments and are much easier to put on. Many brands like CircAid, BiaCare and Solaris offer durable and effective options to manage lymphedema. Browse our Wrap Catalog for a variety of ankle, thigh high and full leg wraps.

Everyday Compression For Lymphedema

Many brands offer compression knee highs, thigh highs, pantyhose and armsleeves in high compression levels to manage lymphedema. Choose from a variety of sizes, styles, fabrics and compression levels to find the perfect fit for you. Each brand offers different sizing, so make sure to check the size charts for an accurate fit. Save yourself some work and use our Size Machine to automatically calculate your size in all the biggest brands!

Stylish and Supportive Options

Say goodbye to boring old beige armsleeves and stockings. Introducing LympheDivas fashionable compression armsleeves, gloves and gauntlets in a variety of sizes, lengths and compression levels for the perfect look and feel. Looking for more patterned armsleeves? Try the Juzo Signature sleeves, available in three compression levels. Add some style to any outfit in the Juzo Dream Collection, available in a variety of knee highs, thigh highs, leggings, pantyhose and armsleeves in solid and tie-dye seasonal colors.

Lymphedema Awareness Month Giveaway!

In honor of the second annual World Lymphedema Day on Monday, March 6, 2017, BrightLife will be offering a $100 gift card for lymphedema compression garments. Through the month of March, enter to win below!

To enter, log in with your email address or Facebook information below. Then, choose how you would like to enter: You can answer a question, leave a comment about the blog post, follow us on Twitter, or tweet a message. Click here for more help. Good luck!! The contest ends Friday, March 31st at midnight.

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Lymphedema on Ellen + Armsleeve Giveaway!

For our final giveaway in honor of Breast Cancer Awareness Month, you can win a Solidea compression armsleeve of your choice! We hope that promoting awareness about lymphedema will help to educate both patients and doctors. Many people develop this condition after undergoing cancer treatment, and others are born with it. Lymphedema can affect many parts of the body, but most common are swollen arms and legs.

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The Washington Post recently released an article about a newborn twin who was born with lymphedema. The doctor could not figure out what caused the twin’s badly swollen legs. The mother, Heather Ferguson, was simply told to keep an eye on it to see if the symptoms got worse.  “That was the worst moment,” she recalled. “It’s so horrible to know that something’s wrong and to get the brushoff. I felt like we were on our own and that the medical system had just washed its hands of us.”

When a doctor figured out that the baby was suffering from lymphedema (thanks to searching the Internet), Ferguson was told to go back to the pediatric surgeon, not a lymphedema therapist. The surgeon again just advised to keep an eye on it. Without treatment, people with lymphedema are prone to infections and can develop  complications. Going untreated can also make everyday tasks very difficult if not impossible. It is extremely important to educate medical professionals and patients who are at risk about this condition to catch it early on before symptoms get worse.

Many people are unaware that they have lymphedema until it is already moderate to severe due to the lack of awareness and education about the condition. Hundreds of millions of people around the world suffer from lymphedema, yet many doctors know nothing about it and just brush symptoms off. While there is no cure for lymphedema, compression garments are used to manage and provide relief for symptoms.

BrightLife Direct wants to help promote education and awareness about this condition to better the lives of people suffering lymphedema and to get patients the treatment they need. You may have seen people posting #LymphedemaOnEllen videos on YouTube to help build awareness. We hope to see lymphedema on Ellen soon! You can check out our video above. Comment on our blog to share your favorite #LymphedemaOnEllen videos.

CMYK baseSolidea compression garments and shapewear are designed in Italy with fashion and function in mind. Many Solidea products are uniquely made using 3D Micro Massage technology that helps to stimulate lymphatic system. The 3D wave knit fabric expands and contracts on the skin to moveup to 78% of sluggish lymph back into circulation. The unilateral and bilateral sleeves benefit those who have a hard time wearing a traditional armsleeve because of constricting the upper arm. Graduated compression increases circulation to reduce swelling and fatigue.These products are breathable and are infused with silver ions to reduce the risk of infection as well as bacteria and odor to keep you comfortable and cool. All Soldiea compression armsleeves and gauntlets are made latex free.

To enter, log in with your email address or Facebook information below. Then, choose how you would like to enter: You can answer a question, leave a comment about the blog post, follow us on Twitter or tweet a message. Good luck!! Remember, you can enter once (per entry type) each day. The contest for the Solidea compression armsleeve ends Tuesday, November 3rd at midnight. The winner will be announced the following week.

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Kathy Bates – “The Human Side” + Giveaway!

Kathy BatesAcademy Award winner Kathy Bates has earned 40 wins and 68 nominations including Emmys, Golden Globes and an Oscar. Over the past year, Kathy has taken on a new project – becoming the Lymphatic Education & Research Network’s (LE&RN) National Spokesperson. After being diagnosed with ovarian and breast cancer, Kathy Bates underwent a bilateral mastectomy to remove 19 lymph nodes from her left armpit and three from right. She developed lymphedema shortly after and has to wear a compression armsleeve for the rest of her life unless a cure is found.

To help spread awareness of breast cancer and lymphedema this month, we are giving away an armsleeve each week. Check out the giveaway at the end of this post to enter for your chance to win.

Every day, Kathy connects with others suffering from lymphedema and their families by writing letters to thank them and comfort them. She has made great strides in building awareness and education. She recently spoke at a two-day NIH symposium that took place on September 29-30. Bill Repicci, Executive Director of LE&RN, believes that this conference is a turning point in the field of lymphatics.

In her speech, “Lymphedema: The Human Side,” Bates explains that she was shocked to find out that millions of people suffer from lymphatic diseases, not just breast cancer survivors. Many people are born with it or develop it later in life. With about 10 million Americans and hundreds of millions worldwide, it is surprising that most primary physicians haven’t heard of this condition. To make matters worse, many people are not even aware they have lymphedema and suffer in silence. Without treatment, lymphedema symptoms can get worse and infection may occur, which can cause serious complications.

Many doctors who are aware of lymphedema don’t understand the severity of the condition, brushing it off as a “cosmetic issue” or blame symptoms on obesity or other causes. One woman suffered for eight years before being diagnosed with stage 3 lymphedema. Another patient, Marie Apodaca, was told by her doctor that she had to lose weight. She wasn’t diagnosed until she was accidentally hit with a cardboard box on her leg, which caused a clear liquid to drain out of her leg instead of blood. After months of therapy, Marie was able to remove 35 lbs of lymph from her legs.

Managing symptoms is no walk in the park either. Finding a lymphedema therapist isn’t easy. Since there aren’t many, it can be hard to find one that’s available or is located in your area. This can result in long commutes, which can aggravate symptoms. Zalee Harris who suffers from severely swollen arms can’t get regular treatments because of a long waiting list, causing her to be in more pain.

LE&RN focuses on raising awareness and education, but even more so, encouraging people to stop hiding their condition and share their story. Kathy took the Face of Lymphedema Challenge to inspire people to find comfort by sharing stories and to know they’re not alone. Dancer Pearl-Ann Hinds developed LE and decided to choreograph a dance dedicated to lymphedema called “Hello World.” She says “If I continued to hide the reality, the power to change the legs of future generations would be lost.”

Seven-year-old Emma Detlefsen was born with lymphedema in both legs and often battles infections that cause her to be hospitalized. This inspiring seven-year-old appeared before the NY State Legislator last year and convinced lawmakers to pass a bill for research funding that had been languishing for 12 years. She was awarded with the LE&RN Youth Ambassador Award on September 19th at the 5K Walk to Fight Lymphedema & Lymphatic Diseases on the Brooklyn Bridge. Kathy hopes that by bringing Emma’s message to us, it can inspire “even one of us” to accomplish her challenge and hopes you will join the fight for education and research.

Mediven Harmony Armsleeve Giveaway

bld-harmony-giveaway-pinterest For Breast Cancer Awareness Month, each week we will be giving away a compression armsleeve. Every week, we will feature a different brand. This week, you can win a Mediven Harmony armsleeve in your choice of compression level, size and color. To enter, log in with your email address or Facebook information below. Then, choose how you would like to enter: You can answer a question, leave a comment about the blog post, follow us on Twitter or tweet a message. To tweet the message, click the “Tweet” button then go to your profile. Click on the timestamp on the tweet and paste the url in the box below. Click here for more help. Good luck!! Remember, you can enter once (per entry type) every day. The contest for the Mediven Harmony armsleeve ends Friday, October 16th at midnight. The winner will be announced the following Monday. Don’t forget to check back next week for our next giveaway!

 

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RESOURCES

Kathy Bates – Official Website Kathy Bates’ Secret Health Struggle – The Doctors “How I Turned My Lymphedema Into Something Positive” – People Magazine Kathy Bates Awards and Nominations Kathy Bates on Larry King Kathy Bates Hosts the American Cancer Society Ball Lymph Nodes and Cancer – American Cancer Society Hello World – Lymphedema Dance by Pearl-Ann Hinds Emma’s Youth Ambassador Award Acceptance Speech Key Speakers from the NIH Conference in DC

Lymphedema Treatment Act Update + Giveaway!

October is Breast Cancer Awareness Month. This month, BrightLife Direct will be spreading awareness about a condition that many breast cancer survivors face after a mastectomy – lymphedema. This condition refers to mild, moderate or severe swelling (edema), and is often caused by the removal of lymph nodes during cancer treatment. Blockage in the lymphatic system results in the buildup of lymph fluid, which is why swelling occurs.

Lymphedema can develop in the legs, arms and other parts of the body. Some people are born with this condition and others develop it. Approximately 10 million Americans suffer from lymphedema. Breast cancer survivors who develop lymphedema have to wear compression garments over their arms and hand everyday to increase circulation to help manage their condition.

In addition to sharing information on lymphedema this month, we will be doing a weekly giveaway in honor of the many brave Breast Cancer survivors. See below for more information and your chance to win!

Today we want to share information and updates on the Lymphedema Treatment Act.

According to lymphedema specialist, Sue Enerson, many of her patients who are covered by Medicare are only allowed one visit after being diagnosed with lymphedema and more often than not, compression garments are not covered. The financial burden on lymphedema patients is huge. Patients often require frequent visits to doctors and lymphedema therapists to receive treatment and also to learn how to manage lymphedema at home. Patients must also purchase a supply of compression garments to wear continuously, for the rest of their lives, which comes at no small cost.

The Lymphedema Treatment Act is a federal bill that will improve insurance coverage for treatment, mandating that insurance companies provide the medical supplies to patients that are required to manage lymphedema symptoms (including compression garments, bandages, etc.). This in turn will reduce the total healthcare costs associated with lymphedema by reducing the number of complications and disabilities that result from poor treatment of lymphedema symptoms. Currently, most insurance policies including Medicare do not cover lymphedema treatment.

Seniors who suffer from lymphedema should not be punished for taking the necessary steps to treat their condition,” said Reichert. “By rectifying Medicare’s failure to cover compression garments we give seniors their best chance and real hope to fight back against this chronic disease. I am pleased to be joined by my colleagues from both sides of the aisle in this fight against lymphedema. – Congressman Reichert

On March 26, 2015, the Lymphedema Treatment Act was introduced to the current Congress, including a “Findings” section to explain the need for medical coverage. Treatment for lymphedema includes manual lymphatic drainage, wearing compression garments and Complete Decongestive Therapy (CDT), which the bill will make the standard of care for lymphedema.

The Lymphedema Treatment Act currently has over 100 cosponsors. BrightLife Direct as well as many other compression garment companies are showing their support for the Lymphedema Treatment Act. Compression garment makers Sigvaris, Jobst, Medi, Juzo, Solaris and LympheDIVAS also support the bill.

How can you help? Contact your members of Congress to make sure they support the bill. Learn more here: http://lymphedematreatmentact.org/

Win A Prize Every Week!

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While there is no cure for lymphedema yet, compression garments help to provide relief. Every Friday during the month of October, we will be hosting a giveaway to win the featured armsleeve of the week. To kick of Breast Cancer Awareness Month, this week we are offering a Juzo Soft Compression Armsleeve. Juzo Soft is available in six different colors as well as a variety of new colors for fall and winter. Juzo Soft Armsleeves are available in three compression levels and in a variety of sizing options. Winners can choose the color, compression level and size.  Don’t forget to keep checking our blog for your chance to win!

You can enter below by logging in with an email address or through Facebook and following BrightLife Direct on Twitter, answering a question, commenting on the blog post or by tweeting a message in the giveaway box below. To tweet the message, click the “Tweet” button, then go to your profile. Next, click on the timestamp on the tweet and paste the url in the box below. Click here for more help.

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RESOURCES

Breast Cancer Navigator

Shop Lymphedema Products

Managing Lymphedema

Kathy Bates – Life With Lymphedema

March is Lymphedema Awareness Month

Sigvaris Supports the Lymphedema Treatment Act

Congressman Reichert’s Involvement in Reintroducing the Bill