Promoting Lymphatic Research + Giveaway!

Lymphedema is a chronic lymphatic disease that affects 10 million Americans and hundreds of millions worldwide. Symptoms include swelling in one or more parts of the body. Although many people are affected by lymphedema, many patients go undiagnosed or untreated due to a lack of knowledge and resources. To change this, many organizations, companies, doctors and patients are coming together to promote awareness and find a cure for lymphedema.

LE&RN

The Lymphatic Education & Research Network (LE&RN) is a non-profit organization founded in 1998 to promote research in the fields of lymphatic diseases, lymphedema, and related disorders. Through their industry outreach program, LE&RN has established partnerships with the biotech and pharmaceutical industries working to find improved treatments and cures.

The Lymphatic Education & Research Network offers support and provides resources to lymphedema patients, including a tool to find a local lymphedema therapist. LE&RN has established a patient registry and tissue bank to serve as a repository of information for current and future researchers. Several fellowship grants are awarded each year to doctors, scientists, and organizations working in the field of lymphatic research. The immediate goal is to expand our understanding of the lymphatic system.

Actress Kathy Bates partnered up with the Lymphatic Education & Research Network (LE&RN) to build awareness about lymphedema. Some people are born with it, others, like Kathy Bates develop lymphedema after a mastectomy. Lymphedema is commonly caused after the lymph nodes are damaged or removed from breast cancer treatment, or it may develop after injury or surgery.

Medi For Help

Mediven, a compression hosiery company, is making a difference in Haiti. Medi For Help was founded in 2010 after an earthquake struck the country leaving more than 300,000 men, women and children injured. This relief project provides amputees with lower limb prostheses and offers orthopedic, wound care and lymphedema treatment. Medi For Help has provided treatment to 4,500 Haitians and counting. The project provides support once the patient starts walking again. Medi For Help also now treats patients with diabetes or those recovering from a car accident.

Compression Garments To Manage Lymphedema

Although there’s no cure for lymphedema (yet!) the condition can be managed with the help of a lymphedema therapist, compression garments, Manual Lymph Drainage, and other techniques. Many compression companies are paving the way in wound care and lymphedema treatment to provide innovative, comfortable and effective high compression garments.

Strong & Durable Wraps

Compression wraps are a great alternative to high compression garments and are much easier to put on. Many brands like CircAid, BiaCare and Solaris offer durable and effective options to manage lymphedema. Browse our Wrap Catalog for a variety of ankle, thigh high and full leg wraps.

Everyday Compression For Lymphedema

Many brands offer compression knee highs, thigh highs, pantyhose and armsleeves in high compression levels to manage lymphedema. Choose from a variety of sizes, styles, fabrics and compression levels to find the perfect fit for you. Each brand offers different sizing, so make sure to check the size charts for an accurate fit. Save yourself some work and use our Size Machine to automatically calculate your size in all the biggest brands!

Stylish and Supportive Options

Say goodbye to boring old beige armsleeves and stockings. Introducing LympheDivas fashionable compression armsleeves, gloves and gauntlets in a variety of sizes, lengths and compression levels for the perfect look and feel. Looking for more patterned armsleeves? Try the Juzo Signature sleeves, available in three compression levels. Add some style to any outfit in the Juzo Dream Collection, available in a variety of knee highs, thigh highs, leggings, pantyhose and armsleeves in solid and tie-dye seasonal colors.

Lymphedema Awareness Month Giveaway!

In honor of the second annual World Lymphedema Day on Monday, March 6, 2017, BrightLife will be offering a $100 gift card for lymphedema compression garments. Through the month of March, enter to win below!

To enter, log in with your email address or Facebook information below. Then, choose how you would like to enter: You can answer a question, leave a comment about the blog post, follow us on Twitter, or tweet a message. Click here for more help. Good luck!! The contest ends Friday, March 31st at midnight.

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Pete@BrightLife Direct

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The First World Lymphedema Day!

BrightLife Direct Supports World Lymphedema Day

We are so excited to share the highlights from the very first annual World Lymphedema Day. March 6 is dedicated to honor lymphedema patients and this year, this great day was made official by the US Government. World Lymphedema Day is meant to promote awareness to this condition and show appreciation to everyone who is affected by lymphedema. More than 150 million people suffer from lymphedema worldwide and it is time that we find a cure.

One of the leaders in lymphedema advocacy, the Lymphatic Education & Research Network (LE&RN), led the effort to officially dedicate March 6th as World Lymphedema Day. This organization strives to raise awareness and educate people about this condition and has worked side by side with Kathy Bates to get the voices of lymphedema patients heard.

Senators Chuck Schumer and Chuck Grassley introduced a Resolution to the US Senate to recognize March 6th as World Lymphedema Day. Many lymphedema patients shared their stories and talked about how they were celebrating the day, urging others to spread the message.

Many people are aware of the fight against cancer, but few know that many breast cancer survivors develop lymphedema as a result of treatment. Others are born with it. Lymphedema can develop in the arms or legs and symptoms range from mild to severe. With so many people suffering from this condition, it is surprising that so few doctors are aware of it. This results in many patients going un-diagnosed for much of their life, and their symptoms worsening without proper treatment.

March is Lymphedema Awareness Month. We urge you to take some time to learn more about lymphedema, talk about it with your friends and family, and see how you can help make a difference this month. To show our support, we are giving away one Juzo Soft compression garment of your choice! The winner can choose one of the following in any size, color and compression level: knee highs, thigh highs, pantyhose, leggings, gauntlet, glove or armsleeve.

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Kathy Bates – “The Human Side” + Giveaway!

Kathy BatesAcademy Award winner Kathy Bates has earned 40 wins and 68 nominations including Emmys, Golden Globes and an Oscar. Over the past year, Kathy has taken on a new project – becoming the Lymphatic Education & Research Network’s (LE&RN) National Spokesperson. After being diagnosed with ovarian and breast cancer, Kathy Bates underwent a bilateral mastectomy to remove 19 lymph nodes from her left armpit and three from right. She developed lymphedema shortly after and has to wear a compression armsleeve for the rest of her life unless a cure is found.

To help spread awareness of breast cancer and lymphedema this month, we are giving away an armsleeve each week. Check out the giveaway at the end of this post to enter for your chance to win.

Every day, Kathy connects with others suffering from lymphedema and their families by writing letters to thank them and comfort them. She has made great strides in building awareness and education. She recently spoke at a two-day NIH symposium that took place on September 29-30. Bill Repicci, Executive Director of LE&RN, believes that this conference is a turning point in the field of lymphatics.

In her speech, “Lymphedema: The Human Side,” Bates explains that she was shocked to find out that millions of people suffer from lymphatic diseases, not just breast cancer survivors. Many people are born with it or develop it later in life. With about 10 million Americans and hundreds of millions worldwide, it is surprising that most primary physicians haven’t heard of this condition. To make matters worse, many people are not even aware they have lymphedema and suffer in silence. Without treatment, lymphedema symptoms can get worse and infection may occur, which can cause serious complications.

Many doctors who are aware of lymphedema don’t understand the severity of the condition, brushing it off as a “cosmetic issue” or blame symptoms on obesity or other causes. One woman suffered for eight years before being diagnosed with stage 3 lymphedema. Another patient, Marie Apodaca, was told by her doctor that she had to lose weight. She wasn’t diagnosed until she was accidentally hit with a cardboard box on her leg, which caused a clear liquid to drain out of her leg instead of blood. After months of therapy, Marie was able to remove 35 lbs of lymph from her legs.

Managing symptoms is no walk in the park either. Finding a lymphedema therapist isn’t easy. Since there aren’t many, it can be hard to find one that’s available or is located in your area. This can result in long commutes, which can aggravate symptoms. Zalee Harris who suffers from severely swollen arms can’t get regular treatments because of a long waiting list, causing her to be in more pain.

LE&RN focuses on raising awareness and education, but even more so, encouraging people to stop hiding their condition and share their story. Kathy took the Face of Lymphedema Challenge to inspire people to find comfort by sharing stories and to know they’re not alone. Dancer Pearl-Ann Hinds developed LE and decided to choreograph a dance dedicated to lymphedema called “Hello World.” She says “If I continued to hide the reality, the power to change the legs of future generations would be lost.”

Seven-year-old Emma Detlefsen was born with lymphedema in both legs and often battles infections that cause her to be hospitalized. This inspiring seven-year-old appeared before the NY State Legislator last year and convinced lawmakers to pass a bill for research funding that had been languishing for 12 years. She was awarded with the LE&RN Youth Ambassador Award on September 19th at the 5K Walk to Fight Lymphedema & Lymphatic Diseases on the Brooklyn Bridge. Kathy hopes that by bringing Emma’s message to us, it can inspire “even one of us” to accomplish her challenge and hopes you will join the fight for education and research.

Mediven Harmony Armsleeve Giveaway

bld-harmony-giveaway-pinterest For Breast Cancer Awareness Month, each week we will be giving away a compression armsleeve. Every week, we will feature a different brand. This week, you can win a Mediven Harmony armsleeve in your choice of compression level, size and color. To enter, log in with your email address or Facebook information below. Then, choose how you would like to enter: You can answer a question, leave a comment about the blog post, follow us on Twitter or tweet a message. To tweet the message, click the “Tweet” button then go to your profile. Click on the timestamp on the tweet and paste the url in the box below. Click here for more help. Good luck!! Remember, you can enter once (per entry type) every day. The contest for the Mediven Harmony armsleeve ends Friday, October 16th at midnight. The winner will be announced the following Monday. Don’t forget to check back next week for our next giveaway!

 

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RESOURCES

Kathy Bates – Official Website Kathy Bates’ Secret Health Struggle – The Doctors “How I Turned My Lymphedema Into Something Positive” – People Magazine Kathy Bates Awards and Nominations Kathy Bates on Larry King Kathy Bates Hosts the American Cancer Society Ball Lymph Nodes and Cancer – American Cancer Society Hello World – Lymphedema Dance by Pearl-Ann Hinds Emma’s Youth Ambassador Award Acceptance Speech Key Speakers from the NIH Conference in DC